Cancer registries

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  • At present, more than 200 population-based cancer registries exist in vari- ous parts of the world. They cover about 5% of the world’s population, but the proportion is much greater in developed countries than in developing ones. Moreover, in developing countries, registries are more likely to cover urban areas, where access to diagnostic and treatment services is better. Nationwide cancer registration operates in some countries such as England & Wales, Scotland, the Nordic countries, Canada, Australia, New Zealand, Israel, Cuba, Puerto Rico and The Gambia.

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  • The second requirement is a clear and well defined starting point. For popu- lation-based cancer registries, the starting date (from which the survival is calculated) is the incidence date (see Section 17.3.1). The third requirement is a clear and well defined outcome. Death is gener- ally the outcome of interest, but some registries collect enough data to allow them to conduct analyses using recurrence of tumour, or first recurrence of a particular complication, as the outcome of interest.

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  • Tuyển tập các báo cáo nghiên cứu về bệnh học thý y được đăng trên tạp chí Acta Veterinaria Scandinavica cung cấp cho các bạn kiến thức về bệnh thú y đề tài: Oral malignant melanomas and other head and neck neoplasms in Danish dogs - data from the Danish Veterinary Cancer Registry...

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  • Tuyển tập các báo cáo nghiên cứu về bệnh học thý y được đăng trên tạp chí Acta Veterinaria Scandinavica cung cấp cho các bạn kiến thức về bệnh thú y đề tài: Mast cell tumours and other skin neoplasia in Danish dogs - data from the Danish Veterinary Cancer Registry...

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  • Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành hóa học dành cho các bạn yêu hóa học tham khảo đề tài:Cancer risk among residents of Rhineland-Palatinate winegrowing communities: a cancer-registry based ecological study

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  • The true incidence of ovarian cancer, along cancer of the female gynecological tract worldwide with other cancers is unknown in less-developed Department of Health has recently started moves to recreate the South African Cancer Registry.

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  • Active follow-up usually means that the registry attempts to contact physi- cians or patients on a regular basis to see if the patient is still alive. Because this is expensive, many registries rely on passive follow-up, matching with death certificates and assuming patients are alive otherwise. Mixed systems use death certificates plus updating the ‘date last known alive’ from hospital admissions, consultations, and other sources of data. Active follow-up of the patients is usually very difficult in developing coun- tries.

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  • In addition to incidence figures, population-based cancer registries that conduct adequate follow-up of their patients are able to estimate the preva- lence of cancer. Prevalence figures give an indication of the burden of the dis- ease in the community. Cancer registries generally assume that once diag- nosed with cancer, an individual remains a prevalent case until death. Thus, prevalence may be estimated from data on incidence and survival.

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  • Young is the former chief of the SEER Program and former chief of the California Cancer Registry, past-president and former director of the North American Association of Central Cancer Registries (NAACCR) and the International Association of Cancer Registries. Special thanks to Rosemarie Clive, CTR, for guiding us in our presentation of the requirements of the American College of Surgeons (ACoS) Commission on Cancer (CoC) and Kathleen Zuber Ocwieja, CTR, for her review of Section J,

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  • Neither randomized clinical trials nor meta- analysis are available and evidence is based on a number of retrospective studies with multivariate for mortality risk factors or data from national cancer registries (Gilliland et al., 1997; Hundahl et al., 1998). Unfortunately, very remarkable differences in patient’s selection, staging systems, and clinical management affect the available studies. In particular, radioiodine treatment is not routinely carried out in a standard manner and outcome results of different studies are thus not comparable (Sciuto et al., 2009).

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  • The registry of the new city was then contacted until the individual was located. Changes of residence were recorded in a database with the exact date of moving. In the case of death, date and city of death were provided by the local registry office. Cause of death was either ascertained through a record linkage system of the NRW regional statistical office or through the local health offices. The record linkage system has been described in detail by Klug and colleagues (2003). Local health offices provided an anonymous copy of the relevant death certificate.

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  • Joanna Didkowska PhD works in the Department of Epidemiology and Cancer Prevention, National Cancer Registry at the Maria Sklodowska Curie Memorial Cancer Center and Institute of Oncology in Warsaw, Poland. Since 1999, she has been Chair of the Association of Cancer Registries in Poland. She focuses on descriptive cancer epidemiology in Poland, especially prediction models, and the determinants of the health status of Poles and inhabitants of central and eastern Europe. She works on analyses of data from the National Cancer Registry.

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  • Robert A Haward MB ChB DPH FFPH is Emeritus Professor of Cancer Studies at Leeds University. He qualified at Bristol University in 1968 and pursued a career in public health medicine in three district authorities before being appointed Regional Director of Public Health for Yorkshire from 1986 to 1994. He was then appointed Professor of Cancer Studies in Leeds until his retirement in 2006. He remains involved in national research activities. His academic career combined extensive national work developing cancer policies, with research interests in cancer services delivery.

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  • The first population-based cancer registry was set up in Hamburg (Germany) in 1926. Three nurses visited hospitals and medical practitioners in the city at regular intervals. They recorded the names of new cancer patients and transferred data to a central index in the health department. This index was compared once a week with official death certificates. Other popu- lation-based cancer registries were set up in subsequent decades, so that by 1955, almost twenty had been established in various countries....

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  • Existing health information systems and registries should be strengthened to ensure effective data collection. Health information systems for cervical cancer should be able to monitor coverage of screening and adequate treatment using WHO indicators, and strengthen cancer registries to measure programme impact. Health information systems should also create or strengthen databases to track women with abnormal test results in need of treatment and those receiving care.

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  • Monitoring for coverage, effectiveness, impact, usage (loss and wastage), and safety of vaccines should be planned and use existing systems as much as possible. Collection of coverage data can be challenging, and should include disaggregated data by dose and age at delivery site. Nominal registries may be useful for collecting coverage information and ensuring proper follow-up, but may require unique national identifiers. With appropriate technical support, vaccine impact evaluations may be done using HPV prevalence studies in certain settings.

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  • The poverty rate is the percentage of a population living in poverty and is a useful measure of economic deprivation in a neighborhood or community. Census tract poverty rates from the 2000 U.S. Census were linked to New Jersey State Cancer Registry incidence data. New Jersey census tracts were grouped by the poverty rate into three poverty area groups. The three poverty area groups were defined as follows: areas with low poverty (less than 10% of the population below the poverty level); areas with medium poverty (10 to 19.99% of the population below the poverty level);...

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  • Anssi Auvinen MD PhD received his MD (1989) and PhD in epidemiology (1997) from the University of Tampere, Finland. He has worked as a research scientist at the Radiation and Nuclear Safety Authority and the Finnish Cancer Registry and was a visiting scientist at the National Cancer Institute in the United States. He is Professor of Epidemiology at the University of Tampere. His main research interests include cancer screening and the health effects of radiation.

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  • The data items to be collected by a registry are dictated by the purpose for which the registry has been established, by the method of data collection used and by the resources available to the registry. However, the emphasis should be on the quality of the data collected rather than on the quantity. It is advisable that registries in developing countries should start by attempting to collect only information on the basic items listed in . A unique registration number (cancer registry number) is assigned by the registry to each patient.

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  • As mentioned in Appendix 2.2, it is recommended that cancer registries use the International Classification of Diseases for Oncology (ICD-O) (Percy et al., 1990) to code the topography (site of primary tumour) and morphol- ogy (histological type) of the tumours. The fifth digit in the ICD-O mor- phology codes describes the behaviour of the tumour—benign, borderline, in situ, malignant. The topography of a tumour is the most important data item recorded and provides the main basis of tabulation of registry data....

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