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Consent, ethics and genetic biobanks: The case of the Athlome project

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This article provides a critical overview of the ethics and governance of genetic biobank research, using the Athlome Consortium as a large scale instance of collaborative sports genetic biobanking. We present a traditional model of written informed consent for the acquisition, storage, sharing and analysis of genetic data and articulate the challenges to it from new research practices such as genetic biobanking.

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Nội dung Text: Consent, ethics and genetic biobanks: The case of the Athlome project

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